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Currently Watching: Latest videos by fogggygyrl
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The Realities of ME/CFS Posted by: fogggygyrl
Video duration: 229 seconds The facts about ME/CFS in this video were taken from many different ME/CFS organizations that are on the Web. ME/CFS can range from mild to severe in patients. It is estimated that 25% of ME/CFS patients suffer from a severe form of the illness and are completely disabled by it. This is a physical illness and is not psychological. Related: cfids, cfs, chronic, disability, encephalomyelitis, fatigue, gary, illness, jules, mad, me, myalgic, syndrome, world Display Video Comments | Hide Video Comments | Add Comment |
Latest comments made on this video:
By: essy111. on 04 Jan 09, 18:53:27
Please stay away from NHS intrying to get help cos they wont! Here is some remedies Ive tried that helped tremendously Licourice root powder Echinacea tea Milk thistle and Miricle mineral solution MMS for short.
By: Timebandit720. on 02 Jan 09, 11:42:13
Does anyone know if theres any kind of network out there, to bring people with M.E. together, where they can maybe compare notes for what treatments they've tried and if they've had any positive results, (and to what degree?) I think this couild really help. I've tried many herbal tablets, a couple from the US did help a bit, maybe 8%, just enough to get me through the day, but they are expesnsive. There are many other treatments I've heard of, but am wary of throwing good money away. Any input?
By: ShowalterdontlikeME. on 29 Nov 08, 01:15:50
Excellent video. It really underlines the tragedy of M.E./CFS (CDC) in children and young people.
By: antares4141. on 23 Nov 08, 22:26:04
Mold and CFS symptoms are directly related to each other. You can prove this to yourself by going to walmart buying a $37 dome shaped 9x7 tent,(no stakes needed, nylon very low on VOC'S) setting it up in your bedroom and putting a medium to large size hepa filter in it. Don't come out without a respirator designed for asbestos and mold abatement EVER,For about a week anyways. I know I am not the only one with this condition. PLEASE TRY IT AND CONFIRM IT FOR YOURSELF WHAT YOU ARE UP AGAINST!
By: danielfarrell2008. on 19 Oct 08, 18:56:18
my made a spelling error below where it says decrease excrsie in the first paragraph I meany increse excersise
By: danielfarrell2008. on 19 Oct 08, 18:54:02
I am currently 18 and have CFS since 11 I find that you should find and optium balance between rest and activity that daramticly reduces symptoms. Then you should very very slowly decrease rest and very very slowly decrease excersise, to go up the scale. If you feel you yourself going backwards you should decrease activity and increse rest until symptoms are under some control and then revert to the plan I stated at the begining. Reading books on the illness can also help
By: bubblesocks. on 23 Sep 08, 23:56:49
Thankyou for this, it's really helpful to find that you are not the only one. ME is very isolating, and although I wouldn't wish it on anyone it's great to know there are others going through the same thing.
By: spamsalot. on 10 Sep 08, 07:01:33
This video is so helpful to me,and Im glad you used those images from the pain exibition,Im looking at the site now,and the art gives me great comfort that maybe,if people look closer,they can see and understand what M.E/CFS sufferers like me go through.
By: SANDMANCASTHISSPELL. on 04 Sep 08, 16:37:56
Your video was very moving. I could identify with the women loOking out the bars. Thanks you so very much. Sandman Cast His Spell
By: fogggygyrl. on 26 Aug 08, 12:37:31
Ty so much Peacelove! I hope you continue to improve. I know just what you mean too. I totally appreciate when I can get out now as well.
By: peacelovemiffy. on 22 Aug 08, 16:39:16
Have M.E.+fibromyalgia.video shows girl in prison cell looking out to natures beauty.i so UNDERSTAND that feeling+was housebound for years.I am now able to go outside occasionally+really appreciate all i see,smell+hear as i had been starved of outside life.When i get out, it makes life worth living again.Those of u who are only able to look out of the window,hold strong, keep going,1day u may b as lucky as me + actually get out there for real!! love and blessings....x
By: fogggygyrl. on 07 Aug 08, 00:31:20
Hi blink, This is Gary Jules covering the song Mad World by Tears for Fears. You've explained how I get through life with this DD. I have to rest before doing anything and now that I'm much worse I have to rest after I do things as well. People can look up the Spoon Theory which explains this as well even though that is for MS I believe, it's the same phenomena.
By: theblinkisyou. on 06 Aug 08, 02:57:49
(cont) I'm not very eloquent today sorry lol but hopefully that makes sense. You have to think of it like we just get "less" than everyone else. It can be managed, SORT OF. Not what normal people call "managed" but what you or I would call that. Who is the singer on your video? They seem familiar to me
By: theblinkisyou. on 06 Aug 08, 02:56:43
(sigh, I had to post the rest of my comment on a second post because of the "over the limit" thing on comments) For me I've learned to "save up" ahead the times I need to go to the doctor or GO places. Think of it as "life force". My definition of this disease and how I explain it to people is "We have less "life force" than other people. And once you use up the allotment for that time period, it doesnt replentish until..." something like that..(Is how I explain it.
By: theblinkisyou. on 06 Aug 08, 02:54:57
The def of CFS has one very small but important part that ppl miss so don't be disheartened:) I forget how its worded in the def but we all call it "cfs payback" VIP :) its there, and it's what makes CFS cfs. I think its "followed by a period of...(something about "fatigue") but its there.
By: fogggygyrl. on 03 Jul 08, 13:12:27
As Rich Carson stated the other day, many people probably develop CFS from a variety of assaults on the immune system combined with genetic tendencies. We don't know for sure. But Chronic Lyme Disease is certainly similar to CFS and FMS and it's very possible to have two of these illnesses or all three as well as others.
By: fogggygyrl. on 03 Jul 08, 13:08:00
From what I've been reading most autopsies of PWCs show high levels of HHV-6 in the brain and spinal fluid and other organs and tissues of the body. Like Sophia Mirza, for example. May she rest in peace.
By: runninghoove. on 27 Jun 08, 09:09:57
CFS is simply undiagnosed Lyme Disease. I have CFS. I also have Lyme Disease. I have had lifelong depression. Great video by the way!
By: xxxsusserxxx. on 25 Jun 08, 19:11:34
A wonderful and poignant video. The only problem I have is that the illness has a proper name. MYALGIC ENCEPHALOMYELITIS. I know..I HAVE IT. I refuse to call it the absurd name chronic fatigue. I am not tired..WE are not tired. WE ARE SERIOUSLY ILL. WE are dying of a serious virus. We have been denied the truth. The song is perfect-Thank you for the posting.
By: fogggygyrl. on 18 Jun 08, 08:34:39
Thanks for your feedback everyone. I'm glad that this video is being shared so much and helping others understand more about our illness. Your comments all mean a lot to me. :) Ever since YouTube shut down for servicing last night this video won't play in Firefox. It plays in IE though. I'm going to try to get that fixed. I hope we all see better days in the future. fogggyrl
By: justter. on 16 Jun 08, 21:40:02
OMG! I can't believe I never commented on this vid! I put it on my vlog, but no comment? Yep, I'm a bonehead. This is an incredibly moving video my friend. I'm so sorry I didn't comment before now. I'm sure I rated it. I hope that our videos will help to enlighten more people. At least we are doing what we can by raising awareness. Big gentle hugs, Teri
By: gangstagrannie. on 14 Jun 08, 00:26:24
I believe ME/CFS exists and I also believe there is something very suspicious going on when the govt won't acknowledge an obvious illness. I am aware that the general public have often been 'used' for testing in spraying bio-chemicals which often work on the immune system. Might be something to look into? Also, check out how damaging flouride in water is, yet they continue to flouridate the water. Many would be amazed.
By: baloneks. on 03 Jun 08, 09:44:50
Why government donīt accord that the ilness exists?why have I to permit every day,every second in my life 5 years yet?Iīm so exhausted a donīt have any help???I wanna cry..
By: crash1094. on 26 May 08, 21:43:40
Oh my, lovely and sad. Mostly true. The governments may be hiding us away, but there is new research at different universities around the world. They can't keep us hidden forever. I've done better on an experimental medicine (which costs a small fortune) - but FDA took it away from me three months ago. The clock is ticking. If I don't get it back in 9 months, I will disappear again. I don't want to. Beautifully done, beautifully done.
By: octrosie20. on 26 May 08, 12:21:07
Excellent: many thanks.